As I pondered how best to do my part in spreading awareness to ALS this month, I wavered between writing something poignant or making a video and free styling. It occurred to me that telling my own personal story might make a bit more of an impact.
I have not shared what you will see me talk about in this video with many people. I talk from my heart, unfiltered, unrehearsed and parts are raw and may be hard to hear. Please excuse any use of mature language.
What you see here is me. A person living with ALS.
I hope this brings more awareness.
Someday, every month of the year will be ALS Awareness Month!
This song kind of says it all for me…
Sunsets over the beaches from now on
Each day looking for new ways to go on
Slow burn watching the world turn from my arms
New way of measuring each day till it’s gone
Sunrise building a reprise in my heart
Regret tight around my chest plays its part
‘Till it’s gone
But to shower you with pity would do you no good at all
No good at all
Now watching the sunset, sunset, sunset, sunset
Over the beaches, beaches, beaches, beaches