Myself, Lauren and my brother Paul visited the wondrous, beautiful and spectacularly cold (almost zero degrees) beaches of Falmouth, Mass. A long planned trip to Boston and The Cape to meet my new friends and to expand my ALS Warrior family and add some of the worlds best and brightest to my ever-growing medical care team.
In the coming days I will share all of my experiences of compassion, grace & hope. Until then here’s a short Vlog post filmed at the very end of our adventure. You will hear the blistering wind beside my happy voice and the music and video of James Taylor & Carly Simon from the 70’s on Martha’s Vineyard.
This video is from the inaugural Rock for Rich event benefiting Do It For The Love and ALSA CT.
Oct.11, 2018 – Garcia’s at The Capitol Theatre Port Chester, NY
Michael Franti w/ Victoria Canal & Carl Young
Welcome Speech & Introduction…
Nobody Cries Alone
Say Hey I Love You
Thanks to everyone for supporting Rock For Rich. This was one of the best nights of my life. Having so many friends and family with me celebrating life through the healing power of live music! This was a culmination of an idea I had about a year ago, and the inaugural event exceeded my wildest dreams in so many ways.
Rock for Rich was a huge success. It can’t be done without us all working together. Music is healing, and as Michael Franti said ..and sang on the Garcia’s stage “Nobody Cries Alone!”
This video is about Fathers Day and the emotion I felt today.
It’s both beautiful and bitter sweet.
Couldn’t find the streangth today to open myself up here in a personal video. But here’s a tribute to my Dad’s and me. Father & Son.
Been going through lots of old pictures these days. It’s fun putting some old photos in new digital albums. I have so many great pictures and memories
I haven’t put up anything new here on my blog lately… so I a put together a video while I was going through my photos. One of my favorite Beck songs is the video soundtrack.
Here is the post I made on May 1st. It’s my story about my journey with ALS, if you missed it you can check it here:
As I pondered how best to do my part in spreading awareness to ALS this month, I wavered between writing something poignant or making a video and free styling. It occurred to me that telling my own personal story might make a bit more of an impact.
I have not shared what you will see me talk about in this video with many people. I talk from my heart, unfiltered, unrehearsed and parts are raw and may be hard to hear. Please excuse any use of mature language.
What you see here is me. A person living with ALS.
I hope this brings more awareness.
Someday, every month of the year will be ALS Awareness Month!
This song kind of says it all for me…
Sunsets over the beaches from now on
Each day looking for new ways to go on
Slow burn watching the world turn from my arms
New way of measuring each day till it’s gone
Sunrise building a reprise in my heart
Regret tight around my chest plays its part
‘Till it’s gone
But to shower you with pity would do you no good at all
No good at all
Now watching the sunset, sunset, sunset, sunset
Over the beaches, beaches, beaches, beaches