My speech – Living with ALS – A patients perspective

This past Saturday I spoke at the annual ALS Conference at the Hospital for Special Care, New Britain, CT. I’ve been a patient at the ALS and Neuromuscular Clinic for the previous two years, and was honored when asked to speak about my own personal perspective on ALS. It felt right to be in front of so many other families that have been stricken with this awful diagnosis. It was very easy for me to open up and share my experience, strength and hope with all of these warriors, their families and caregivers. While I know each one of us goes through this journey differently, I can only hope those in the audience were able to identify with something in my journey. This is probably my fourth or fifth large speaking engagement, and I feel that I get as much out of doing them as everybody in the crowd seemed to.

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This is what ALS looks like… this is my new normal” 

“I don’t ask why me?.. any longer. I ask… what can I do for others?”

“How I  handle myself through this painful journey will define my new legacy”

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My awesome neurologist at the Hospital For Special Care, Dr. Charles Whitaker

 

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Click the link above for tickets!

New Rock for Rich website is up and running!

https://rockforrich.com

 

Okay, my family and friends… here’s the deal:

Thursday, October 11 is the inaugural Rock for Rich event!

We have rented out Garcia’s at the Capitol Theatre from 5:30pm to 7:30pm before the Michael Franti & Spearhead concert for an EPIC pre-show fundraiser.

Here are the instructions to get your tickets to the event:

**IMPORTANT: Don’t buy basic GA tickets, you need to get to the Rock for Rich tickets by using promo code (rockforrich) at the bottom of the Ticketfly page

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If you want to come to the fundraiser party ONLY from 5:30-7:30, and not stay for the Michael Franti concert,  purchase tickets with the link below to use PayPal or credit/debit cards:Pre show party only

If you can’t make it at all, please consider making a donation directly to either or both of these wonderful foundations through the donation links below. These donations will get added to our Rock for Rich fundraiser goal.


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Rock For Rich t-shirts will be available at the party, or on my website very soon.

 

 

Help me to try and make a difference in this world as an advocate and an activist. I came up with the idea of Rock for Rich to help people with ALS, and others with life-threatening illnesses, by coming together with music as the backdrop to raise funds and help increase the much-needed awareness for the ALS community.

Let’s help ALS patients and their families directly and donate to research for a cure. A cure will come, I know it will. It may not be in my lifetime, but I’m here to help the people that come after me and to get something accomplished while I can help.

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Garcia’s at the Cap

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