I want the “Right to Try!”

The House is set to vote today (Tuesday) on the Right To Try Bill.

Latest Update: It didn’t pass. 😦    #F#ckAllThatVotedAgainst!

This whole process is so freaking frustrating and confusing and I’m just so sick of politicians from all sides of the aisle telling patients with little hope of survival what promising treatments they can pursue. In my case, I would like to try a Stem Cell treatment currently under Phase 3 Clinical trials here in the US. The current trial, if you’re accepted into it, gives patients a 50% chance of getting the treatment or 50% chance of getting Placebo. Well… I don’t have time to wait on the FDA, and I don’t have time to waste on the chance of getting a sugar pill. Sorry, I’ve already gone through one ALS drug clinical trial which the FDA finally did not approve after being on it for an entire year. All that time not knowing if I was on it or getting a placebo. I want the choice to get this procedure done now, safely… in this country. Not South America, not Asia, not the Middle East. We need Mass General, Mayo Clinic…. the best medical institutions in the world. Sadly, I think even if this bill passes today, we are still a long ways away.

I want my “RIGHT TO TRY”
End Rant…

Right To Try allows terminally ill Americans to try medicines that have passed Phase 1 of the FDA approval process and remain in clinical trials but are not yet on pharmacy shelves. Right To Try expands access to potentially life-saving treatments years before patients would normally be able to access them.

Advocates for Americans facing terminal and life-threatening illnesses, wrote to urge our support for the Trickett Wendler, Frank Mongiello, Jordan McLinn & Matthew Bellina Right to Try Act of 2018. This bill will help protect the right of sick Americans to try to save their own lives. Fewer than 3 percent of cancer patients can participate in clinical trials, and for less common diseases like ALS and deadly Duchenne muscular dystrophy, the numbers are even lower. Right to Try gives people who cannot participate in trials a new path to access promising treatments.

This video clearly tells it like it is! I am with you, Matt Bellina!

Thanks for advocating for all of us, Matt! #TrueWarrior

House to Give Patients a ‘Right to Try’

Screen Shot 2018-03-13 at 5.06.03 PM

2 thoughts on “I want the “Right to Try!”

  1. This is a great post. I agree these FDA laws need to change.
    Want to get involved in making this happen! For you, for me,
    for everyone with a terminal illness. Sending you so much love
    today and everyday, Rich. Your energy is infectious! Thank you
    for lifting my spirits.

    Liked by 1 person

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