So as you may or may not know, there is no cure out there for anyone with ALS.
Bummer I agree wholeheartedly of course. But progress is being made everyday. I’m more than confident a cure is just years away. I’m certainly gonna do my bit to be here when that happens or help those long after me to have a chance. I’ve spent hours upon hours doing research on everything and anything out there worth trying. There are great strides being made. I’m most interested in what Stem Cell discoveries will bring. I’m fighting for the right to try a specific Stem Cell treatment developed in Israel and I’m fascinated with that. This treatment just last month received approval to move into a Phase 3 study here in the US. That’s really awesome: It means they’re one step (a really big one at that) closer to approval from the FDA.
Now I should tell you that the FDA has approved only one single drug for ALS patients, and that was 22 years ago (since then, nada.) That drug, it’s said, could possibly add a few more months for patients but no one I’ve ever met is excited about it. So that was the state of FDA approving anything significant until this past May 5th, 2017. Then, out of nowhere, medical professionals in the US were informed that some new amazing drug trialed in Japan, called Radicava extended life expectancy in ALS patients by 33.3% (that’s by a third, for those playing at home).
Wow, I said… sign me up. I’ll start now, let’s do this. I’ve got graduations and weddings and future grandkids to attend to.